MY sweet Son got and apointment
I called the St Joe's CRS clinic to talk with Dr Doolittle (yes that is her real name Dorthy Doolittle) She called back and left two messages that I missed while I was at my own doctor appointment.
Dash has a vision test tomorrow and also she will effort to get him a hearing test right after.
You see my sweet son is being monitored for a condition called Ushers syndrome. Daddy man and I really feel like crying and just hold it together.
Dash has expressed that his hearing aides are not working well now.The batteries are fine. He has also been having some visual anomalies that rise concern.
Dr Doolittle requested that I go talk to all of the players to see if they have witnessed any falling or clumsiness (to rule out the possibility of inner ear infection or equilibrium b Problems.
The teacher who opened her door to me to an empty room sat down with me and all but began to cry when I asked her about the concerns and such. I think this woman really loves my son so much. I tried to not cry and just took as deep a breath as I could. You see I had an asthma attack last night and started medication for bronchitis this morning. I am sick :(
So I did my best to declare that this child is alright he will be alright. No matter what he is alrihgt. We just really do not want the road ahead of us to be paved with Usher Syndrome. This syndrome causes gradual total blindness and deafness at adolescence. I do not speak this over my boy but because of the findings with the damage to his 8th cranial nerve it is a condition that has left him with two types of hearing loss. That can be an indicator of this condition.
We get him in tomorrow that will help ease the unknown a bit. We will be having to go through this throughout his youth. Like a gray cloud of ebb and flow. Without the DNA testing we would not know for sure. The DNA testing is a bad idea for several reasons I am not his biological mother so I am not concerned about future children of my womb (not that I have one anymore). The ability to be insured would, for my son in adulthood, be gone. He will be covered through this governmental grant until he is 21, but at that time he would no longer have the benefits.
Anyway I am with my children alone tonight. Sick and yet being held up by the love of my Fathers persistent supply and provision. I was able to get an appointment today for my asthma, and the re was a credit on my account :), I was able to get and appointment for Dash. The referral for a painter went very well. He is giving us the labor on the block wall for free, and he starts his team on the house tomorrow. then Friday they come and tape and mask and fix the porch roof and sand down the face boards. Saturday they paint and clean up. The team even will clean up the dog dung! They will clear off the porch and and replace everything as is. They will even fix the front door and varnish it. They will use Dun Edward paint and all of it enamel paint with an additive of a water proofing substance that is used on commercial grades. The house will be power washed tomorrow. We had very good reviews of this company by two friends. So I better rest, rest , rest tonight. I need to go do another breathing treatment.
Thank you for your concerns and support. I want to ask all of you to rejoyce with me for I know God is Godd all the time and His love and provision is awesome. As is his comfort.
Thank you.























