Friday, August 6, 2010

CVIG primary immune , I.V.gamma globulin

Tomorrow 8 a.m. the second infusion will begin. It will be 6 hours out of the day.  Blessing flow in this difficult process. Up until three days ago I was like my old active self. When the gamma globulin wore off it was very noticeable to say the least. So the therapy is working. Bummer just for the IV.
I have found very little on line on this journey so I will try to take some images along the way. With low IgA levels there is a greater risk of anaphylactic shock. I may or may not be able to document the process. It is my hope however to encourage others. The first one was well I do not remember much. Tomorrow the numbing ointment should help with the pain in insertion of the large bore IV. Sorta hurts a lot to start.
I sure would appreciate your prayers. Last time I vomited and slept through it or was drugged through it. If I sleep I need to use the CPAP mask you can imagine I really do not want to loose my cookies in a mask. my hope is for first stick with no complications. We have IV anti nausea meds that were used last time. This time I will not tell her just a moment I dont want anymore. It was not even two minutes later that I heaved. So I will do my best not to neglect it no matter how stoned I may feel. We are going to try to avoid the benidryl this time. I has benefits though that are important regarding allergic reactions to the globulin.

I know who holds me in HIS hand and I practice courage. Pray for my nurse Ashly, that I might make a positive difference in her life. It is my desire to bless her. Pray for the kids they will be at their Aunts all day starting 7:30 yikes I hope we can wake them up. Pray for my sister that she will have the stamina to enjoy the high energy of the kids. That she will have insight to respond according to their abilities. It is so easy to forget that Dove is special needs. Sweet Dash got hurt TWO times today both accidents both forgiven, both times Dove was heart broken she hurt him. I am teaching her to stand up to the fight flight thing and just to speak up. I was harsh with her when the boy got hurt again. A bloody lip. I just sent her to her room before the investigation and it really hurt her feelings. Tomorrow I trust them to GOD and to the hands of another.

See you all on the flip side.
Thanks for your prayers and rejoicing over this amazing chance at a life of health.

post scrip...slept most of the time. The anti-nausea meds make me very sleepy. It went well.

1 comment:

Denise said...

Praying for you, and loving you.

Older women likewise teach the younger women...

• how to love their husbands
• how to love their children
• how to be self-controlled
• how to be pure
• how to be keepers at home
• how to be kind and submissive (not subservient) to their own husbands. (See Titus 2:3-5)

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By Maya Angelou

'A woman's heart should be so hidden in Christ
That a man should have to seek Him first to find her.'

When I say... 'I am a Christian' I'm not shouting 'I'm clean living,'
I'm whispering 'I was lost, Now I'm found and forgiven.'

When I say... 'I am a Christian' I don't speak of this with pride.
I'm confessing that I stumble and need Christ to be my guide.

When I say... 'I am a Christian' I'm not trying to be strong.
I'm professing that I'm weak and need His strength to carry on.

When I say.. 'I am a Christian' I'm not bragging of success.
I'm admitting I have failed and need God to clean my mess.

When I say... 'I am a Christian' I'm not claiming to be perfect,
My flaws are far too visible, but God believes I am worth it.

When I say... 'I am a Christian' I still feel the sting of pain...
I have my share of heartaches, so I call upon His name.

When I say... 'I am a Christian' I'm not holier than thou,
I'm just a simple sinner Who received God's good grace, somehow!

Words have power. Here are a few of my favorite sayings.

  • A warm cup of tea is like a cuddle with a friend.
  • The North American Indians have a more eloquent word for ‘friend’ than we do in English. In their language, the word for friend literally means, “the one who carries my sorrows on his back.”
  • Return with Honor
  • The sage anticipates things that are difficult while they are easy, and does things that would become great while they are small. All difficult things in the world are sure to arise from a previous state in which they were easy, and all great things from one in which they were small. Therefore the sage, while he never does what is great, is able on that account to accomplish the greatest things."
  • “Live so that when your children hear these words they think of you… Fairness Caring Integrity Honesty Love Trust.”
  • "O Lord help my words to be gracious and tender today, for tomarrow I may have to eat them."
  • "No man has ever been shot while doing the dishes"

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e patterns My sister told me of this site

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Amy has clicked her heals and flown to her real home. There is no place like home.

This was given to me for the third time in just a few weeks.

Zephaniah 3:17 NLT
"For the LORD your God has arrived to live among you. He is a mighty savior. He will rejoice over you with great gladness. With his love, he will calm all your fears. He will exult over you by singing a happy song."

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