Inherited Common variable immunodeficiency (CVID) fourth infution

Tomorrow is infusion day. This time the kids will be home. The nurse assures me that it is a good thing for the kids to be here and get accustomed to the idea of what mom is doing. It needs to be demystified.

So Prayers for them I request please. For me also that I do well and easy so it will be a 'no big deal' kind of thing for them. The nurse stays the full six hours.

The last labs got to me today and it show marked improvement in my immune responses. Joy! I have not had illness for three months now! Strength is mine for a good three out of four weeks now and that is such a blessing. Gotta get used to this journey as well. We hope to be able to lighten up on the anti nausea medication so I am not so knocked out.

The plants are coming up well, by Monday I will have to get the master bedroom arbor in. Just could not get to it before the full moon. Sunday I have some humble pie to eat for sure enough the flash camera did get me last month and I am guilty of error. So all day in a traffic class. Goodness it is so embarrassing.  Oh I do hope I can make it through it alright. Oh I just despise those cameras!

The dog had to have a good bath tonight. My darling Golden is growing incontinent, her days are coming due to pass. It was the last thing I should of needed to tend too tonight. Steve helped out. Resting is what is really to be done. And drinking till I float away.

God is good everyday.

Friday Funnies

Colbert storms Capitol Hill for migrant workers

 

Colbert, accompanied by a media swarm, sarcastically testified on Capitol Hill Friday about the conditions facing America's undocumented farm workers. The popular host of "The Colbert Report" told members of a House Judiciary subcommittee that he hoped to bring attention to the workers' hardships.
"I certainly hope that my star power can bump this hearing all the way up to C-SPAN 1," he joked.
"America's farms are presently far too dependent on immigrant labor to pick our fruits and vegetables," he told the subcommittee, keeping in character with the arch-conservative he plays on television.
"Now, the obvious answer is for all of us to stop eating fruits and vegetables. And if you look at the recent obesity statistics, many Americans have already started."
Colbert told the panel that "we all know there is a long tradition of great nations importing foreign workers to do their farm work."
"After all," he said, "it was the ancient Israelites who built the first food pyramids. But this is America. I don't want a tomato picked by a Mexican. I want it picked by an American, then sliced by a Guatemalan, and served by a Venezuelan in a spa where a Chilean gives me a Brazilian."


Read more here at CNN politics

 

Thankful Thursday

The radish are up

This year is my year to have flowers for the gardens.

To my sweet delight there was a woman who did a seed exchange with me.

She wanted food seed, she had flowers to trade. 

This is the collection she sent me

In this quiet time of days finding joy in the living seed is a rest for my soul.

I am happiest when studying, looking at and or planting seed.

The plots are almost all turned now.

The peas (sugar snap) are reaching out for the delight of day.

Here are bachelor buttons below

Two days ago the sky was a blaze yet in an instant it was less so. It passed so quickly. So I find looking out and up has the instant moments that can not be replayed.
Thankkful for that I am slowed to let them come. I am so blessed. God loves me. Me. HE loves you, and knowing this creates in me a love toward you as well.
This amazing blog has languished a bit.
Maybe there is more wisdom in silence at times.When a mouse sneaks into a home it can be unseen but you will know when it is there. One must be stealth to capture and relocate it.
I never did like kill traps. So stealth I sit. Silent watching. I have lost the ability to leave anything out on the counter so to speak. It might just get spoiled.
Pearls well as a jeweler you can tell a real pearl by rubbing it on your teeth. Once you understand it  you will never be able to be confused by a fraud again. You will ever know the real pearl.

I am so disappointed and so discouraged that my absence is so pronounced. So many things have occurred in the last several months that I really do not feel like my old self. Sorrow and apathy have gripped me. Where did my heart go?

Thankfully HE knows where I am and He knows who I am. HE knows where I am going.

How to manage our economic crisis

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There is a nation before us straining at the knee. Panicked, desperate caught up in a web of deceit. Sold a bill of goods, mortgages that they could never afford. Snakes laid waist to the grass. As they ate up the lawns that were once greener. All for the lucre to be gained.
Infectious disease across this nation spread.
Jobs lost plates emptied of greed.
Yet here we stand a clouded sky chocked by fear. Wondering if God is really near

Could this nation of yet avoided the justice due. The equity of consumption, debt and this great country in need.
The hand out to the many all masses every creed. All consumed us when our example was pure greed.

Leader with agendas to take our right name. Defame and misuse it America once was freed. Those forefathers and mothers who sacrificed all. Generation repeated just no more .

To hear the echos of souls cry out in the street. Our lives lay now in ruin, contagious dread.

So on bended knee let us set aside all of the pretense self righteous pride and greed. Now by force we are faced with the truth. We succeeded to  accomplish America leaning toward a bended knee.


If my people, who are called by my name, will humble themselves and pray and seek my face and turn from their wicked ways, then will I hear from heaven and will forgive their sin and will heal their land.   2 Chronicles 7:14

Working in the garage

got a terrible heat exhaustion today

anyone hear from shorty bear? shes been on my mind

Tackle it Tuesday *everyday gardening*

Tending to home means growing a garden to me. This year there is a special reward in it for me.
After two good seasons of food crops and all the soil tending there is now a season this season where some of the earth is set aside just for me. Just for the sake of simple beauty...
Flower gardens and plots. Full of wonder as the life emerges with the tiniest of leaf promising me glory to behold. Bachelor Button flowers reached out this morning for this bride.
Radish too are early emergence so strange how the seeds are up way before their due, Just planted them in the earth ...oh goodness I just realized it has been 7 days! Wow time flies.

Do appriciate your thoughts of dear sweet friendship

tired girl
very very tired girl.
Working so hard to keep above water and to catch up on all these months of listless days.
The garden in also going in with the heat of Indian summer
 almost there.
So much to do.
Please pray for Dove she is so showing her special needs. She a 13 year old is well...not 13. Two years younger are her peers. Yet the tantrum she tossed in the track we were walking in tonight would of made any mom, even the most seasoned just blush and stand startled and amazed. Please pray for Dash he at 10 is so beyond Dove now and beginning to surpass her in several ways and he sees it. He goes from utter frustration with her to playing stuffed animals with her. Too cute really and sweet yes at home so beautiful.
In the world...Lord Lord keep me from even thinking about it.
I walked one mile tonight. We all went to the high school track. Steve walked /ran, kids on bikes and running around on the bleachers. ie Doves apartment and Dash was not allowed in...see what I mean. then he went over to the other side and she came over and locked him out! She was being a jerk! Told her so...well not too proud of that
just pray it is challenging.

My next infusion is Saturday.
A week early to get on a better schedule. This will place me before each holiday infused and with greater immunity when I will need it most.
Still coming to terms emotionally with a grateful yet grieving heart. The effect of the $4000 a month life time need has just over stressed My husband for the future. No retirement in site for him. Insurance is a must.  At 65 I will have his medicare but if lay off we are terrified. Makes me crazy cause I trust that it just has to be in the long run ok. It has always been that God has favored me for his reasons. Just can not imagine Him changing. He is always the same never changing consistent even though I am not.

jabber jabber

I'm blessed
just human and flawed

Master fort builder

Dove was away at a slumber party for a school friend. We invited a friend for Dash to come and sleep over here. This child is of my heart. Her mom and dad are good friends. We supported them on the adoption of this little darling. She is such a joy to have. Sweet sweet kid. They asked for one of my bed time stories off the top of my head and we all added to it. It was so funny and we all laughed so hard.
When embraced by the beauty of youth often the pleasure of those sweet innocent moments wrap around the soul and remind us of the freedoms we as parents can offer the children in our lives.

Now I have been told that 'I' yes me the master fort builder should write a book on the subject. This by two delightful kids, one my own and another of my heart belonging to my dear friend.

These two woke me to come have my breakfast. They cooked egg and cream cheese, muffin as well. They were so kind and sweet to me. Not to even begin to tell you of the hugs that never ended. The release of my neck only after some long tender time of delight.

We all three were outside. I invited them to come help in the garden. Worms 17 and they showed me each on :) rolly pollies for the happy chickens too. Each worm replanted into the newly planted beds.

We all had so much fun

The bed along the wall was readied for planting.

Once the center bed was turned the kids came in with the worm hunt.

They began by chopping the dirt clods but the love of the hunt took over.

Water and picture time we rested a spell. It was warm of weather and of dear pleasure.
One thing that really makes me happy...
Seeing children enjoy life in its natural element.
Delighting in simple things like playing with worms.

With all the help they gave me the other beds were tended too a bit more. Yes those are real beads of sweat. It was really hot this morning we called it quits by 9:30

Of the earth they wonder. 

Then the wonder of the earth pulls them into ponder.

 This bed is now half way turned as well.

The bed at the garden wall got planted tonight and this raised one will get nurtured with a few good watering then feeding it for celery to be planted this coming week.

Hope all of you had a nice weekend.