Let me preface this
with a big
I am so blessed!The doctor and I have been researching some different options for me. We were looking into a process called sub-cutaneous but with low IgA levels I am not a candidate. It is a relatively new process as well. I If I tried it the likelihood of shock is there and it could cause my body to build more anti bodies to IgA. Not good.
Today was set an appointment to go to Good Samaritan Hospital Wednesday morning. My sister will come here at 6 a.m. We will have a long distance to travel but this fellow is a specialist in the field that has done many port insertions. I will have a device set with a catheter under my clavicle (upper chest). It will remain there most likely the rest of my days.
The port will ease the difficulties faced due to several sticks at every infusion. My veins are being blown out. I may even be able to numb the site before the nurse gets here.
It took me all day to try to find a specialist to do the port at the end of it all(after I finally found one)
was stumbled upon.
I feel worn out just calling all the numbers of insurance, doctors and all. the coordinator was stunned that I got so far. God is good. After a $100 deductible it is covered at 100%. God is good. So blessed am I to have such awesome insurance. There is a very remote (not heard of except in children) chance that my body will yet be able to be free of the need for infusions. I can still hope. Even so it will be at least two years of monthly infusions. The port will make it so much less stressful. Infections are yet the greatest concern. There will be a 10 day no lift from the upper body thing. It is out patient.