Thankful Thursday
For years and years I have been made to feel if I were crazy because illness after illness would sweep through me. Odd things that ER doctors could never figure out. Even family at times questioned if those illnesses were simply attention seeking behaviors. I have doubted and even questioned myself over the years. "is this really happening again? Why do I keep getting sick.
I have sought God and prayed for help in this and recently through a set of God consequences I found myself getting allergy shots with my Son. Now it was my sons needs that found me into the help and expertise that was necessary to find a very rair genetic disorder.
It was GOD!
Now after years of this I am full of hope, dignity and humility to be told I will no longer have to live with illness after illness hitting me knocking me down off my wheel.
Today the supplies came for tomorros infusion.
Am I nervous absolutely!
This is what will be sent to me every 4 weeks.
The pump has to be mailed back every infusion.
The refrigerated item is the gamaglobulin that will transform my physical health.
This is $3600!
100% covered! This every 4 weeks!
Possibly I may get to extend the treatments out. That is my hope.
That is my prayer.
I told the driver of the transport that I was happy.
he asked me why?
I told him it was because what ever the road I may be on it will be more about those who walk it with it.
It will be the character exercised over all these years that will make or break me in this.
Though my body be tried a bit over this my heart sees my mind knows that this is God's intervention to the health of my body.
I will live a healthy normal life now.
I will play with abandon with the children and all those who surround me will once again know me by my new name.
Tenacious, vivacious White Raven.
Humor
They sent the instructions to the pump...
IN SPANISH!
The English manual was sent via fax.
I am taking it easy today and drinking a lot of fluids. The process starts 8 am my time and will be a 6 hour project.
A neighbor has offered to watch the kids the
WHOLE DAY!
All I have need of. Helps me to feel comforted that it will all be good.
Signs and wonders give me that peace even if my soul does waver a bit with some nerves a shakin'~~
6 comments:
I wish I lived close.....
I will keep you in my thoughts and say a pray for you, I love how God will use people, places and time for us, he knows just where to put us and others at that right time, but everything that God plans is always right & perfect!!!
Hugs to you~
Annette
May th e lord help you through this procedure
Praise God that you are getting the help you need sis, I love you.
Praise God that you are getting the help you need sis, I love you.
My sister,
I'm thankful that GOD is not only with you but is supplying what you need. He's always faithful! I love you and I'm praying for you this moment and for your family.
I'm sorry I don't get to visit with you often but you are often in my prayers.
Love you!
I do not understand any of that but I can pray..... I know that God works in ways that are just beyond our grasp.... I will pray......... Thank you for all the kind words about Dad...... I am still in such grief....... but I know that Dad is happy and well........ I love ya girl and hope to be back in the blog land soon.......
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