Tuesday, July 6, 2010

Inherited Common variable immunodeficiency (CVID) first infution

The first infution is scheduled for Friday.
The home care nurse will meet us at the doc office. She will monitor me for the 6 hour treatment.
The staff there if I have an anifilactic ?sp, reaction.
Rejoice with me the insurance will cover it at 100% no co-pay!!!
The cost of the treatment will only be $3600 a month! Well better than the $10000 we thought we were facing. The infusion is a lower dose and so costs less. this will help with my life time max on insurance. The meds and the equipment will be delivered via cold packs.
Here I go...
We are still trying to arrange the childcare Steve will either take of and get to be with me or tending the kids, or a little of both. The nurse Stays with me the whole time. Please pray that I do not get sick or vomit. Oh that would really be a drag. The migraine possibility yuck. Well as we see over and over this unmerited favor over me will guard me.


Denise said...

Sweet sis, I love you, praying very much for you.

Anonymous said...

I was diagnosed with CVID in 1982 and have had over 350 infusions. I suggest you look at the Immune Deficiency Foundation website, primaryimmune.org. It will give you a great deal of information about your illness. In 25 years of infusions I have never had serious side effects.
I hope that after your first infusion in your physician's office you will get your infusions at home. It is far more convenient and comfortable.
My only advice is to drink lot of fluids the day before / day of your infusions and most important make absolutely certain they do your first infusion very slowly.
Good luck . .it's a bit intimidating the first time, but you'll get more comfortable in very short time.

Susie said...

I wish a smooth treatment and a swift recovery!

Susie said...

I hope that you have a smooth treatment and swift recovery:-)

Michele Williams said...

I'm praying for you precious friend. God bless you.

Denise said...

Good morning girl.. I am trying to get back to my blog.. Just wanted to stop by a minute..

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• how to be kind and submissive (not subservient) to their own husbands. (See Titus 2:3-5)

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