there was an fund raiser this was my offering a real lesson in diligence.
It was strung but I had to do the findings tearfully one handed in pain.
the clerk however seeing me cane with knee and wrist brace took mercy
he set me up into a different room checking in several hours early
see the number three, God and I have this little game we have played for ever His presence is reminded me in the three. over over and over this way for many a year
my adaptive immune issue is mainly the B-cell issue with secondary low IgA issue
I was walking (hobbling ) to the escalator and she came up and asked if I would mind if she walked with me. So funny she reached into her bag and whipped out a collapsible folding cane. We were so kindred a spirit. She too a seer really helped me get past the anger. Home again into my heart.
Suppose that why you see me here again.
this was the only money I spent a very expensive $30! breakfast to the room the morning of the infusion at the hotel. I did not need to use up any of the energy i had. the conference was almost two walking blocks from my room.
click on image
that's the in room safe
pay per use refer and bar under it
NEVER touched it! $$$$$$$$$$
at the conference there was all the free drinks of my choice. soda water, juice any thing. even at night an open bar. Strange though to think of immune folks drinking. everything that would be found in my room pay per was at the conference for FREE!I have used the techniques that were on the bed to make mine now. The top sheet is under the pillows, blanket folded down at the pillows edge. Head pillow folded in. Throw at the foot. It is fun to get to see how the Ritz does it.
what a palace! the way the pillows were folded in made for a beautiful bed
It was a wonderful rest.
the last day with infusion and the nurse with me all morning i used a wheel chair to transport from room to conference floor. On that day a very sweet fellow gave me favor. He called and got me a LATE check out Sunday so I could sleep through the morning. I had until 1P.M. !
SATURDAY night the kids and Steve joined me at the gala event. It was so wonderful. This place NEVER left me hungry. EVERYTHING was included in my scholarship. The kids swam in two of the pools until they closed. They went on home that night as did I the next day late into the mid day.
Refreshed. The trip was so helpful in healing the anger left by the many years of misdiagnosis, torments and indignities. Most of us had experienced them who had late diagnosis.