Friday, February 11, 2011

Primary Immune National Conference

Today in an icepack chilled box came the gift of life to me. It is wrought by many who were so selfless as to donate the Blood to create it. I found myself holding it up to my heart; the bag of ivig solution. A washed blend of many who together spun for me a healthy chance for life.

It has several times been pointed out to me how expensive it will be to keep me alive if we should or when we might choose to have Steve retire. Every time this falls upon my ear it stings my heart. Being able to share that pain tonight with my Beloved Sweet Husband brought me to weep. Wept I for any inference that my life be simply measured by the dollar sign. I have at times done my best to save face by responding...
'If we run out of funding I will simply stop the IVIG and pass away as God designs'.

How angry after that I became. 
That is before my eyes without anyone bringing it up.
God is our provision. Trusting HIM for my life and my death is our choice. He has NEVER failed us in that. My husband would never ever even imply such a statement to me. He knows how to guard heart. It is also for me to guard heart. Stress is a huge enemy not only to my spirit and soul but even more so to my body.  I will avoid as much of it as possible.

For today and tomorrow, I will hold that bag of gold without the guilt of any one thinking my treatment, my to expensive to keep. Or may someday be so. The many many people who donated their blood to keep me and others alive did not think so. Neither will I. I will embrace that IV bag as I would those who gave the gift of donated blood. 

This will be a new day where I will no longer feel guilty for needing IVIG.

I learned of this conference in June. Perhaps we might be able to attend. It would be good to be with like minded and learn as much as I can about all of the process of living a healthy life with a primary immune disorder. The conference will even have a lecture on the very type I have. No IgA.

IDF 2011 National Conference

It will be held here in Phoenix June 2011

Easy Online Registration Available NOW!

The 10 Warning Signs of Primary Immune Deficiency For Adults
for adults

the lower one is for kids and babies

The 10 Warning Signs of Primary Immune Deficiency


Denise said...

I pray you get to attend the conference sis. Please do not ever feel guilty, this is in no way your fault. God loves you, He gave you this precious gift of life. I love you bunches. Your life is precious to me. Hold that regal head up, we are princesses. Our dad is a king.

Cyndi Lacefield said...

Good Evening,
My name is Cyndi. I have recently joined the blogging world and started my blog about my journey through addiction and abuse to God's wonderful salvation. I have been browsing through the members of other blogs I joined looking for inspirational blogs and blessings. tonight, I happened to click on yours and here I am. Yours struck me bacause last sunday at church my youngest son(18 yrs) gave blood for the first time at a blood drive we had. I was so very proud of him and he said it was no problem and yes, he would do it again1 How my heart swelled in pride for the good thing he did. I told him, Son, you never know how some person may be needing that to keep them alive. Your blog bore witness to that to me tonight and it makes me happy!I will be following to see what other inspiring things you share. Be blessed and enjoy life! Cyndi

David said...

wow. will pray that you can go. was not aware..
guess I have been in my own little world.
How are you my blessed sister?

Brown Shoe said...

Dear Precious Donetta...I had rounds of these emotions too when I was going through chemo years back. Hang in there! You are fearfully and WONDERFULLY made by our loving Father! Blessings! Linda J.

Older women likewise teach the younger women...

• how to love their husbands
• how to love their children
• how to be self-controlled
• how to be pure
• how to be keepers at home
• how to be kind and submissive (not subservient) to their own husbands. (See Titus 2:3-5)

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When I say... 'I am a Christian' I don't speak of this with pride.
I'm confessing that I stumble and need Christ to be my guide.

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I'm professing that I'm weak and need His strength to carry on.

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I'm admitting I have failed and need God to clean my mess.

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My flaws are far too visible, but God believes I am worth it.

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  • The North American Indians have a more eloquent word for ‘friend’ than we do in English. In their language, the word for friend literally means, “the one who carries my sorrows on his back.”
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  • The sage anticipates things that are difficult while they are easy, and does things that would become great while they are small. All difficult things in the world are sure to arise from a previous state in which they were easy, and all great things from one in which they were small. Therefore the sage, while he never does what is great, is able on that account to accomplish the greatest things."
  • “Live so that when your children hear these words they think of you… Fairness Caring Integrity Honesty Love Trust.”
  • "O Lord help my words to be gracious and tender today, for tomarrow I may have to eat them."
  • "No man has ever been shot while doing the dishes"

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