Saturday, December 18, 2010

In this week of life

 Last Friday evening our dear son had his concert for orchestra, He is center back of image. We were so delighted the Grandparents were able to attend. All eyes were on our sweet boy that it was a little over looked on the same evening that Dove announced with the humility befitting her that she had won Student of the month at school.

Monday gave way to my son getting ill and staying home. He went to the (our) doctor. He had a viral infection that was clear for him by Tuesday.

However I was coughing yellow by Tuesday night rather ill again. Arg! it gave way to illness for me and antibiotics. The viral struck me with a bacterial bronchitis and sinus infection. Fortunately the doc on Monday gave me a RX for a 'just in case over the holiday' measure. I started it by Tuesday night, with orders in next day.

Wednesday was his first day of leave. Daddy man is now on a mandatory (said with a grateful affection) leave (paid) until after the first of the year. He had his review and it was awesome. It looks like he may be returning with a raise and a possible promotion. He was a huge part of a very successful job shall we call it. So he helped bundle the kids to the bus stop and giving me the 'sit down rest order', into the doc before lunch. We caught it before phenomena Ya! if it had not been for the forethought to get the Rx on Monday It might not of turned out so well.

Wednesday mandatory rest for 48 hours.

Tell the courts that . Not even 18 hours latter it was Thursday 7:30 a.m. to the court to testify. Got there and the whole thing... It had been postponed and right home I came and rested as much as able. We all slipped through the cracks that the next morning early was doves award ceremony. The Grandparents truly gifted her and us with the arrival there at 8:45 in the morning.

Friday morning was the awards for Dove

 Totally unexpectedly Dash had his name called too! 
Non of us knew about it.
Get this Dash is distraught for another child got a letter but was never called up.
Dash got no letter and was. 
He feels terrible so much so that he is praying for this little girls heart and not really able to accept the award very well at all. He feels it is hers. My boy showed so much character that He deserved praise.
 My attendance was in a warm vest and coat with a mask on my face and straight back to the car and home to rest.

The kids had a half day so daddy man had to do the last minute shopping with me. We were a good team. With his help pushing the cart we were able to do the shop. $400. I got $185. of it for free. I used an online Safeway tool and extra coupons buying mostly lead in adds. Got Christmas shopping done for the meal and for the two weeks all the family will be home together. It was so fun to show him my process.
the kids had a lot of fun shaking the wrapped packages for 15 minutes until we got back.


We were up very late tending to a medication expiration on the anti nausea medication to do the infusion this morning. An on call doctor found us an alternative medication they use for chemo patients. Steve got home at 1 a.m. with it. So an early start today at 8a.m.

It was another real hard start. My body refused again to let the catheter enter the vein. The stick is good but the valve shuts right down, over and over this time third try worked. It would not however let the blood back out to do the blood draw. Another stick with a hard needle draw leaving the other arm very bruised and pained me to the point a holler and I got angry! The blood kept stopping and there were many many vials to get the hard way with that darn needle digging at me. When I got mad the blood let go and started to flow fast! real cool the way it did.

My PTSD is causing the body reactions. We are trying all sorts of things. Music, prayer, trying to visualized another place to go. That was when it was with a large bore needle that the catheter stayed. I was listening to Irish music and tried to watch seagulls fly over the rocky coast. It was so hard to ignore the pain but forced myself to stay there and it just at that instant let it in! It was a horrible place but it was in. Just above my right thumb.

My nurse is so wonderful. She said she is learning so much about the spirit body connection with me. I laughed and told her that "I had a ministry to the medical profession", and that I was non to happy about it at that moment. :) She has never had another patient whose body pushes out the catheter. I may have to consider a implanted port. Surgically into my upper chest. Steve and I are trying to deal with that and pray about it.

So anonymous ivig gal if your reading. Our journey is unique to our own. Yes it is easy dear ivig for so many to have their ivg treatment. Each case is it's own. Wish it was easy for me like it sounds like it is for you. Your very blessed, never take that for granted. I am very blessed too.
Only three iv sticks today and one blood draw stick. Beats the 5 iv sticks last month. Tiring my mind and it is really getting hard on my husband to see me suffer it.

During the infusion the ceiling had a funny black spot on it....Termites!
Little too much for the Daddy Man. Please say a sweet prayer for him if any one is out there.

I know I am not commenting back or email I am sorry. Just feel so little uplift to speak. I would never want to be a Debbie downer to ya. So many years it was I reaching out with supportive kind words. I am trying to reach out really. It just feels like I have so little left of me.

However good news as strange as it might sound. I have a fever tonight. First one in a long long time. An immune reaction to the bronchitis! U HOO   I can not remember the last time I ran a fever, never do. Chills and all but never been well enough to fight it off with a fever.

1 comment:

Susie said...

We have colds and fevers in our house now too:-( Hope all gets better soon.

Older women likewise teach the younger women...

• how to love their husbands
• how to love their children
• how to be self-controlled
• how to be pure
• how to be keepers at home
• how to be kind and submissive (not subservient) to their own husbands. (See Titus 2:3-5)

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By Maya Angelou

'A woman's heart should be so hidden in Christ
That a man should have to seek Him first to find her.'

When I say... 'I am a Christian' I'm not shouting 'I'm clean living,'
I'm whispering 'I was lost, Now I'm found and forgiven.'

When I say... 'I am a Christian' I don't speak of this with pride.
I'm confessing that I stumble and need Christ to be my guide.

When I say... 'I am a Christian' I'm not trying to be strong.
I'm professing that I'm weak and need His strength to carry on.

When I say.. 'I am a Christian' I'm not bragging of success.
I'm admitting I have failed and need God to clean my mess.

When I say... 'I am a Christian' I'm not claiming to be perfect,
My flaws are far too visible, but God believes I am worth it.

When I say... 'I am a Christian' I still feel the sting of pain...
I have my share of heartaches, so I call upon His name.

When I say... 'I am a Christian' I'm not holier than thou,
I'm just a simple sinner Who received God's good grace, somehow!

Words have power. Here are a few of my favorite sayings.

  • A warm cup of tea is like a cuddle with a friend.
  • The North American Indians have a more eloquent word for ‘friend’ than we do in English. In their language, the word for friend literally means, “the one who carries my sorrows on his back.”
  • Return with Honor
  • The sage anticipates things that are difficult while they are easy, and does things that would become great while they are small. All difficult things in the world are sure to arise from a previous state in which they were easy, and all great things from one in which they were small. Therefore the sage, while he never does what is great, is able on that account to accomplish the greatest things."
  • “Live so that when your children hear these words they think of you… Fairness Caring Integrity Honesty Love Trust.”
  • "O Lord help my words to be gracious and tender today, for tomarrow I may have to eat them."
  • "No man has ever been shot while doing the dishes"

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e patterns My sister told me of this site

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Amy has clicked her heals and flown to her real home. There is no place like home.

This was given to me for the third time in just a few weeks.

Zephaniah 3:17 NLT
"For the LORD your God has arrived to live among you. He is a mighty savior. He will rejoice over you with great gladness. With his love, he will calm all your fears. He will exult over you by singing a happy song."

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